REPORT: Baby Ordered To Die In Hospital Despite Parent's Desire To seek Foreign Treatment


The parents of a critically ill baby in the UK have reportedly been told by a European court that they’re not allowed to privately pay for their son to fly to the United States to receive “experimental treatment” and instead must let him “die with dignity” in a British hospital.

According to Breitbart, 10-month-old Charlie Gard’s parents are reported “utterly distraught” after receiving the verdict from the European Court of Human Rights (ECHR).

The ECHR denied their request to send their son for “experimental treatment” in the United States in a final effort to save him.


Chris Gard, 32, and Connie Yates, 31, first took their battle to the UK’s Supreme Court, where they lost.

They then proceeded to appeal the decision, which was supported by British doctors who claimed Charlie would not be saved by the U.S. treatment and should instead die with dignity in Britain, in a French court to the court.
The couple raised more than £1.3 million (just under $1.7 million) for the trip to save their son via a GoFundMe campaign.

“Our gorgeous little 7 month old boy Charlie has a devastating disease called mitochondrial depletion syndrome. Me and his Daddy Chris are both carriers of a faulty gene. (This was unknown to us until Charlie was 3 months old),” they wrote on the GoFundMe page.


“We have been with Charlie day in, day out & watched our poor baby get weaker and weaker, he now needs a ventilator to breathe but we have never lost hope throughout all this time! After endlessly researching and speaking to Dr’s all over the world we found hope in a medication that may help him and a Dr in America has accepted him in his hospital. It hasn’t been tried on anyone with his gene before (he’s only number 16 in the world ever reported) but it’s had success with another mitochondrial depletion syndrome called TK2 which is similar – it’s helping children to get their strength back and live longer!”

“We strongly feel as his parents that Charlie should get a chance to try these medications. He literally has nothing to lose but potentially a healthier, happier life to gain.”
Despite raising funds to privately pay for the treatment in America, the courts in Europe have acted in a way that some U.S. politicians describe as a “Death Panel,” where the court decides who lives and dies.

The ECHR ruled Tuesday that the British doctors were correct and that the treatment would not save the child. According to the court, the application by the parents was “inadmissible” adding that its decision was “final”.

“Our thoughts are with Charlie’s parents on receipt of this news which we know will be very distressing for them,” said a spokesperson for Great Ormond Street Hospital in a statement.

“Today’s decision by the [ECHR] marks the end of what has been a very difficult process and our priority is to provide every possible support to Charlie’s parents as we prepare for the next steps,” the statement added. “There will be no rush by Great Ormond Street Hospital to change Charlie’s care and any future treatment plans will involve careful planning and discussion.”

Understandably the mother and father disagreed.

“We just CAN’T let our baby die when there is something that might help him! We won’t give up on him because he has a rare disease,” Charlie’s mother argued.

“He deserves a chance and he deserves a life as much as anyone else. We understand that rare diseases don’t get enough funding for research but why should that be a reason for a child to die?! He’s here now and this could help our baby.”

Sources:



No comments

Powered by Blogger.